Atlantoaxial instability in Children with Down syndrome
Breastfeeding
Helping Babies with Down Syndrome Learn to Breastfeed
La Leche League International – Breastfeeding Your Baby with Down syndrome
Children’s Minnesota – Breastfeeding an infant with Down syndrome
Julia’s Way: Breastfeeding & Down Syndrome
Dental care
NDSS – Dental Issues & Down syndrome
Dual diagnosis
Kennedy Krieger Institute – Down syndrome & Autistic Spectrum Disorder: A look at what we know
Growth charts
CDC: Growth Charts for Children with Down syndrome
Healthcare Transition
American College of Physicians: Pediatric to Adult Care Transitions Toolkit
Got Transition: Federally-funded national resource center on healthcare transition
Got Transition: Special Populations Resources & Research
Heart Disease
American Heart Association: Congenital Heart Defects
Puberty
Children’s Hospital of Pittsburgh: Down Syndrome Podcast Series
Birth Control/Menstrual hygiene
Adult Down Syndrome Center: Menstrual Hygiene
Adult Down Syndrome Center: Birth Control in Women with Down syndrome
Potty training
Potty Training: A Journey to Successful Toilet Training
Regression
DSMIG-USA: Regression in Persons with Down Syndrome
Assessment & Diagnosis of Down Syndrome Regression Disorder: International Expert Consensus
Social stories
https://sites.google.com/view/charlies-clinic/development/behavior#h.tngljx5m65ui
Woman’s Health
Adult Congenital Heart Association: Birth Control for Women with Congenital Heart Disease
Adult Down Syndrome Center: Menopause in Women with Down syndrome
Adult Down Syndrome Center: What is the Effect of Menopause on Cognition in women with Down syndrome
Management of Contraceptives & menstrual complaints in patients with Down syndrome
Grief
Adult Down Syndrome Center: Helping Children & Adults with Down syndrome to cope with grief
University of Hertfordshire: Managing Grief Better: People with Intellectual Disabilities
Disability Rights History
Olmstead Rights: The_Americans_with_Disabilities_Act_of_1990_ADA
ABLE accounts/ special needs trust
Family Resource Center of Ohio: Special Trusts & ABLE accounts
Guardianship/POA/living will
Disability Rights Ohio: Guardianship, Frequently Asked Questions
Health Insurance
The Ohio Legislature: Termination of Coverage of Child
Behavior
Adult Down Syndrome Center: The Groove
Medical Training
University of Michigan Medical School Center for Disability Health & Wellness
Aging
National Resource Center for Aging with Disability
Spanish Resources
Mi hijo con sindrome de down – hermanos
Mass General Patient Resources
Down Syndrome Pregnancy – Materials in Spanish
Assure Brochure – Desarrollo físico del bebé
Pacer Center – Entendiendo el Sistema de Intervención Temprana