Resources

University of Hertfordshire: Managing Grief Better: People with Intellectual Disabilities

December 1, 2023

This article likely addresses the unique challenges and needs of individuals with intellectual disabilities in the context of experiencing and processing grief. It may offer insights into how grief can manifest differently in this population compared to the general population, and provide strategies or best practices for caregivers, family members, and healthcare professionals to support individuals with intellectual disabilities in managing their grief. This resource can be particularly valuable for those seeking a deeper understanding of the emotional well-being of people with intellectual disabilities and looking for effective ways to assist them through periods of loss and mourning.

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Adult Down Syndrome Center: Helping Children & Adults with Down syndrome to cope with grief

December 1, 2023

These resources may cover topics such as understanding the grieving process, providing emotional support, and strategies for managing grief in individuals with Down syndrome, who may experience and process loss in unique ways. This can be a valuable tool for those seeking support and information on navigating the emotional challenges associated with grief and loss in the context of Down syndrome.

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Management of Contraceptives & menstrual complaints in patients with Down syndrome

December 1, 2023

The article emphasizes that enhanced health care for individuals with DS leads to improved quality of life and increased life expectancy.

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Adult Down Syndrome Center: What is the Effect of Menopause on Cognition in women with Down syndrome

December 1, 2023

This resource likely explores how menopause can impact cognitive functions in women with Down syndrome, discussing potential changes or challenges they may face during this transition. It may offer insights into research findings, practical advice, and strategies to support cognitive health during menopause for women with Down syndrome. This information can be particularly valuable for caregivers, healthcare providers, and women with Down syndrome themselves, helping them to understand and effectively manage the cognitive aspects of menopause.

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Adult Down Syndrome Center: Menopause in Women with Down syndrome

December 1, 2023

This resource provides information and guidance on understanding and managing menopause in this specific population. It likely covers topics such as the age of onset, symptoms, and health considerations unique to women with Down syndrome experiencing menopause. This can be an invaluable tool for caregivers, healthcare providers, and women with Down syndrome themselves, offering insights into the physical and emotional changes during this stage of life and strategies for maintaining health and well-being.

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Adult Congenital Heart Association: Birth Control for Women with Congenital Heart Disease

December 1, 2023

This PDF: Adult Congenital Heart Association (ACHA) titled "Q&A: Birth Control 2022." This resource is likely a comprehensive guide or a set of frequently asked questions about birth control options and considerations specifically for individuals with congenital heart defects. It may provide valuable information on various birth control methods, their safety, and suitability for those with heart conditions, as well as guidance on how to choose the most appropriate method. This document would be particularly useful for individuals with congenital heart defects, their partners, and healthcare providers looking for detailed and reliable information on birth control in the context of congenital heart conditions.

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Charlie’s Clinic website

December 1, 2023

Focus on behavior and development in individuals with Down syndrome. Charlie's Clinic is a developmental and behavioral pediatrics clinic that provides specialized care for children with Down syndrome. The webpage likely offers information and resources related to the behavioral aspects of Down syndrome, including common behavioral patterns, challenges, and strategies for management and support. This resource would be particularly useful for parents, caregivers, and healthcare professionals seeking to better understand and effectively address the behavioral needs of individuals with Down syndrome.

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Assessment & Diagnosis of Down Syndrome Regression Disorder: International Expert Consensus

December 1, 2023

"Regression in Persons with Down Syndrome" published in "Frontiers in Neurology," a peer-reviewed scientific journal. This article delves into the phenomenon of regression in individuals with Down Syndrome, exploring its clinical features, potential causes, and treatment strategies. It's a scholarly piece likely aimed at a professional audience, including researchers, clinicians, and healthcare providers, offering in-depth insights into this specific aspect of Down Syndrome.

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DSMIG-USA: Regression in Persons with Down Syndrome

December 1, 2023

This PDF document is from the Down Syndrome Medical Interest Group - USA (DSMIG-USA). The document is titled "Regression in Persons with Down Syndrome." It appears to be a resource aimed at providing information about regression in individuals with Down syndrome, discussing its characteristics, potential causes, and approaches to management or intervention. This type of document is likely valuable for healthcare professionals, caregivers, and families who are seeking to understand and address issues related to sudden or gradual loss of cognitive, social, and/or adaptive skills in persons with Down syndrome.

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